Now seizure free, epilepsy patient wants to share her music – Mayo Clinic News Network

Destiny Rhodes finds solace in new music.

Identified with temporal-lobe epilepsy when she was 17 months aged, Future states when she started enjoying guitar as a teen, it became a consistent resource of consolation during her unsure health. Inspite of medication, Destiny’s seizures ongoing for more than 20 many years, normally happening various situations a 7 days. The medicine also plagued her with a plethora of discouraging facet results that Destiny describes as “lots of undesirable thoughts.”

“I had dizziness, drowsiness, melancholy, anger, tiredness, strange style, gum agony, shaking difficulties, emotion off balance, thoughts of deja vu, and I would get robust complications,” Future says. “I felt stressed and concerned. I could not tolerate loud appears. I would get eye pressure and be sensitive to robust gentle.”

‘Mayo Clinic changed her life’

The signs have been unbearable, prompting Destiny’s mother and father to journey from their dwelling in Dublin, Georgia, to uncover a treatment that would give their daughter a improved lifestyle.

“We went to a lot of areas — Atlanta, Augusta and Savannah,” recollects her mother, Rosa Rhodes, “But it was Mayo Clinic that adjusted her existence.”

Future arrived at Mayo Clinic Florida on Oct. 23, 2018, for the first of far more than 60 appointments. Just after her initial visit, Destiny underwent a in depth presurgical evaluation, such as magnetic resonance imaging that discovered scarring in her still left and proper temporal lobes. A positron emission topography scan also confirmed an abnormality in these regions. An electroencephalogram recorded several habitual seizures.

The moment screening was concluded, a crew that integrated epilepsy medical doctors and nurses, mind surgeons, radiologists and psychologists reviewed her circumstance. The team suggested a brain electrical stimulation therapy with an strategy recognised as a responsive neurostimulation program. This approach includes inserting permanent electrodes in the mind.

About three months immediately after her initial go to, two electrodes have been implanted in her mind wherever she experienced scars, and from the place the seizures were being coming. Brain electrical stimulation remedy titration was executed through subsequent visits that led to a considerable reduction in seizures. By Oct 2019, Destiny was totally free from medical seizures.

Read the rest of Destiny’s tale on Sharing Mayo Clinic.